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Lupus Research Institute
330 Seventh Avenue, Suite 1701
New York, NY 10001
(212) 812-9881
Fax: (212) 545-1843
www.lupusresearchinstitute.org
Patients, their families, and top scientists established The Lupus Research Institute (LRI) in 1999 out of a sense of urgency to attack and defeat lupus. Today LRI stands at the forefront of innovation in lupus research. The national nonprofit organization has raised millions in private sector funds—part of its Campaign for a Cure to back 42 novel research studies and grants that support talented investigators pursuing lupus research. Already, 73% of LRI's initial 3-year grants have produced significant results, leading to expanded funding from the NIH and other government offices. The Institute backs bold, high-impact basic and clinical research studies grounded in sound deductive logic. Scientific and medical specialties represented among grant recipients range from rheumatology to cardiology, nephrology, neurology, and dermatology. LRI also invests in the future by recruiting, motivating, and supporting talented new investigators.
The Lupus Research Institute National Coalition has helped to gather together groups supportive of lupus research, including state and local patient organizations and advocates, into a National Coalition. With considerable strength in breadth and numbers, this powerful coalition:
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Promotes public awareness of the seriousness of lupus
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Advocates for a vigorous public and private research effort
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Collaborates on initiatives to increase funding for novel lupus research
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Empowers lupus patients to speak out for improved treatments and a cure
www.lupusresearchinstitute.org/coalition.php
Alliance for Lupus Research, Inc.
28 West 44th Street, Suite 1217
New York, NY 10036
(212) 218-2840 or 1- 800- 867-1743
www.lupusresearch.org
The Alliance for Lupus Research, Inc. (ALR), is a nonprofit organization devoted exclusively to the support of promising research for the prevention, treatment, and cure of lupus. Through accelerated, focused, goal-oriented research programs, the ALR aims to promote basic and clinical sciences to achieve major advances leading to a better understanding of the causes of lupus.
Lupus Alliance of America, Inc.
3871 Harlem Rd.
Buffalo NY 14215
(716) 835-7251 or 1-866-415-8787
www.lupusalliance.org
The Lupus Alliance of America is a National organization comprised of affiliate members. The focus of the Alliance and every one of its affiliates is to provide resources and support to improve the lives of lupus patients. LAA does this by developing and distributing resources to be used locally where individuals can benefit. The purpose of the Alliance is to provide existing affiliates with the necessary education, tools and support to enhance and expand their current services. The Alliance has a strong interest in nurturing new organizations interested in providing services in underserved geographic areas of the country.
Lupus Clinical Trials Consortium, Inc. (LCTC)
47 Hulfish Street, Suite 442
Princeton, NJ 08540
(609) 921-1532
www.lupusclinicaltrials.org
The LCTC is a nonprofit organization that encourages the identification and testing of promising new therapies for lupus. It provides infrastructure support grants to certain academic institutions to support their clinical research activities; encourages lupus clinical researchers from those institutions to share their expertise; supports and conducts educational efforts to show the need for lupus clinical research; and disseminates scientific insights to advance the discovery of new lupus therapies.
Lupus Foundation of America (LFA), Inc.
2000 L Street, N.W., Suite 710
Washington, DC 20036
(202) 349-1155 or 1- 800- 558-0121
www.lupus.org
The LFA assists local chapters in providing services to people with lupus, works to educate the public about lupus, and supports lupus research. 40 LFA chapters provide education through information and referral services, health fairs, newsletters, publications, and seminars. Chapters also provide support to people with lupus, their families, and friends through support group meetings, hospital visits, and telephone help lines.
Rheuminations, Inc.
221 East 48th Street, Ground Floor
New York, NY 10017
(212) 593-5180
Fax: (212) 593-5181
www.dxlupus.org
Rheuminations, Inc. is a private, nonprofit foundation committed to funding excellence in medical research to achieve a better understanding of the causes of lupus and to bring new treatments to market; to educate and to empower those who live with lupus and those who care for them; to establish a higher level of public awareness about the disease.
SLE Lupus Foundation, Inc.
330 Seventh Avenue, Suite 1701
New York, NY 10001
(212) 685-4118
www.lupusny.org
The SLE Lupus Foundation supports and encourages medical research to find the cause and cure of lupus and improve its diagnosis and treatment. It also provides a wide variety of services to help patients with lupus and their families. In addition, this voluntary organization conducts a broad-based public education program to raise awareness of lupus and increase understanding of this serious, chronic, autoimmune disease.
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
NIAMS/National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
(301) 495-4484 or 1-877- 22-NIAMS (226-4267)
Fax: (301) 718-6366
TTY: (301) 565-2966
www.niams.nih.gov/
The National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse is a public service sponsored by the NIAMS that provides health information and information sources. The clearinghouse provides information on lupus. Fact sheets, additional information, and research updates can also be found on the NIAMS Web site.
Community Health Charities of New York
38 Clinton Ave, PO Box 5127
Cortland, NY 13045
1- 800-724-3840
Fax: (607) 758-8823
www.healthcharitiesny.org
Community Health Charities of New York is an organization dedicated to improving the health and well-being of all people throughout New York State. This is accomplished by representing and funding our member health charities through employee workplace giving campaigns.
American College of Rheumatology
Association of Rheumatology Health Professionals
1800 Century Place, Suite 250
Atlanta, GA 30345
(404) 633-3777
Fax: (404) 633-1870
www.rheumatology.org
The American College of Rheumatology (ACR) is an organization of doctors and associated health professionals who specialize in arthritis and related diseases of the bones, joints, and muscles. The Association of Rheumatology Health Professionals (ARHP), a division of ACR, aims to enhance the knowledge and skills of rheumatology health professionals and to promote their involvement in rheumatology research, education, and quality patient care. The association also works to advance and promote basic and continuing education in rheumatology for health professionals who provide care to people with rheumatic diseases.
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48021-2227
(586) 776-3900 or 1-800 -598-4668
www.aarda.org
The American Autoimmune Related Diseases Association (AARDA) is the only national nonprofit voluntary health agency dedicated to bringing a national focus and collaborative effort to the over 100 known autoimmune diseases through education, awareness, research, and patient services. By collaborating with the National Coalition of Autoimmune Patient Groups (NCAPG), AARDA supports legislative advocacy for autoimmune disease patients. AARDA provides free patient education information, physician and agency referrals, forums and symposia, and a quarterly newsletter.
Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
(404) 872-7100
1-800- 283-7800, or your local chapter (listed in the telephone directory)
www.arthritis.org
The Arthritis Foundation is the major voluntary organization devoted to supporting arthritis research and providing educational and other services to individuals with arthritis. It publishes free pamphlets and a magazine for members on all types of arthritis. It also provides up-to-date information on research and treatment, nutrition, alternative therapies, and self-management strategies for patients with autoimmune diseases. Chapters nationwide offer exercise programs, classes, support groups, physician referral services, and free literature. For more information, call your local chapter, listed in the white pages of the phone book, or contact the Arthritis Foundation at the above address.
New York State Department of Health Arthritis Program
The New York State Department of Health Arthritis Program was created to help New Yorkers learn how to better manage their disease. The Program partners with a variety of organizations to better inform the public about arthritis and related diseases, and how to live with the disease more effectively and comfortably through the implementation of evidence-based, self management interventions.
www.health.state.ny.us/diseases/conditions/arthritis/arthritis_act_index
Johns Hopkins University Arthritis Center
The Johns Hopkins Arthritis Center web site where you can find information on diagnosing, treating and managing arthritis for patients, physicians and anyone else interested in arthritis.
http://www.hopkins-arthritis.org/
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