Lupus Foundation of Mid and Northern New York, Inc.

Lupus Foundation of Mid and Northern New York

Welcome

For the past 30 years, the Lupus Foundation of Mid and Northern New York, Inc. has been providing local education, support, and outreach services for people with lupus and their loved ones, and promoting programs of public awareness, advocacy, and research. For the Fiscal Year ending on September 30, 2008 our organization's administrative costs were only 1.76% leaving 98.24% of every dollar raised going directly to our Program Services!

It is our hope that if you have lupus or know someone who has lupus you will use this website as a tool to take control and learn to live with lupus. We realize that lupus does not just affect an individual; lupus affects the entire family. We are here for you as you and your loved ones continue on your lupus journey.

News & Events

MAY IS LUPUS AWARENESS MONTH

LUPUS AWARENESS DAY IN NY STATE CAPITAL

Lupus Agencies of New York State Leaders Honi Kurzeja,
JoAnn Quinn, Peggy Dowd, Kathleen Arntsen, Senator
Joe Griffo, Assemblywoman RoAnn Destito, Janet Murphy,
Eileen Aman, and Stephanie Mills receiving the NYS
Resolution declaring May as Lupus Awareness Month
in New York State on Tuesday, May 5, 2009 in the
Legislative Office Building in Albany, New York.

Download a copy of the Resolution Click Here

For more photos of the Awareness Event Click Here

5th Annual Lupus Education Symposium & Luncheon
Learning, Linking and Looking Ahead
was held on Saturday, May 2nd, 2009
with 120 attendees!

Assemblywoman RoAnn Destito (3rd from left)
presenting the NYS Resolution declaring May as
Lupus Awareness Month in New York State to
Lupus Foundation of Mid and Northern New York
Board Members Sandi Frear, Kathleen Arntsen
and Stephanie Darwak at the May 2nd, 2009
Lupus Education Symposium in Verona, NY.

For more symposium photos Click Here

The Loop for Lupus Motorcycle Poker Run scheduled
for Sunday, July 12th in Verona has been CANCELED.
It will not be rescheduled in 2009 due to time constraints.
We are sorry for any inconvenience this causes.
Please pass this message onto any others
who were interested in the event and contact us
if you have any questions. Thank you very much.

9th Annual Lupus Charity Golf Classic
was held on Friday, August 14, 2009 at
Shenendoah Golf Club
at Turning Stone Resort Casino
For pictures and results
Click Here

If you are Photosensitive or just want to protect yourself from the sun
we just received sun protective clothing donations from Coolibar Sun
Protective Clothing. Please contact us at the office 315-829-4272
or by e-mail if interested in finding out more about these products.

Insure Patient Access
Sign the National Code of Conduct Health Petition Now

Recent Education Meeting
Click Here

National Advocacy Award Recipient
Click Here

Recordbreaking Research Donation
Click Here

Research Highlights
The latest news in lupus research and drug development
Click Here

Lupus Research Institute National Coalition Clinical Trials Website

Online Shopping for Lupus Foundation of Mid and Northern NY

http://www.iGive.com/LupusMidNNY
If you are an online shopper please consider clicking on the above link and a portion of the price of your order will be donated to us. It does not cost you anything extra. We will receive an additional $5 contribution if you register and purchase something at www.iGive.com within 45 days of joining. Just make sure you sign up with iGive.com and choose us as your charity. Thank you and Happy Shopping!

www.MyCause.com
Choose us as your selected charity and then shop at a retailer affiliated with MyCause and up to 12% of your purchases go to Lupus Foundation of Mid and Northern New York and you pay nothing extra. Just click on this link. http://MyCause.com/LupusMidNY

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